Live Parkinson's - Live an Exceptional Life!
Sep 25, 2026 · 51 min · 9 segments
Send us Fan Mail Can your Apple Watch help you and your neurologist manage Parkinson's disease more precisely? In this episode of *Live Parkinson's…
Amy Gordon FranzenGuestChris KustenbotterHostSo the monthly report, because it does give you a whole bunch of information.
And I know a lot of people when they go to their appointment and they only get a lot of times they only get one every six months or maybe eight months.
Is that something that you can send electronically to your movement disorder specialist or neurologist so that that can help prepare them for you and prepare you for your visit?

And actually, we have a lot of neurologists and movement disorder specialists are very familiar with this report that Chris is talking about.

You can put it into MyChart or into email and send it to your doctor before your appointment.

absolutely unique and powerful information to help make the most of that appointment.

I think one of the, you had asked before the difference that I've noticed in Parkinson's versus oncology.

One of the realities of neurological disease is that it does generally progress the over a long time period.

And because of that, you're typically only seeing your doctor for half an hour every few months, if you're lucky.

And the time between those appointments, it's really... helpful to be able to frame what's happening in that half hour visit that you have with your doctor.

And so having something that is printed in front of you that objectively shows what happened over the last three or six months is an incredibly helpful tool to have to be able to give a better picture of your disease over time.
And, you know, Parkinson's has always been, I guess, called a boutique disease because everybody, you have similar symptoms, but everybody experiences things differently.
And I think the nice thing about using Strive PD and Guardian is that it can help your doctor look at when you're having your tremors or when you're having dyskinesias.
So it's actually, I guess the way I'm looking at it is it really is taking data and helping them use precision medicine to give you the best quality of life.
I guess people... a lot of times get nervous when what's going to happen with this data or how can this data be used for clinical research or new drug development? Because maybe there's a lot of people out there that don't necessarily want to participate in a clinical trial and take a medication, but if the data can be used to help advance Parkinson's research, I think people might be a little bit more open to that.
So the monthly report, because it does give you a whole bunch of information.
And I know a lot of people when they go to their appointment and they only get a lot of times they only get one every six months or maybe eight months.
Is that something that you can send electronically to your movement disorder specialist or neurologist so that that can help prepare them for you and prepare you for your visit?

And actually, we have a lot of neurologists and movement disorder specialists are very familiar with this report that Chris is talking about.

You can put it into MyChart or into email and send it to your doctor before your appointment.

absolutely unique and powerful information to help make the most of that appointment.

I think one of the, you had asked before the difference that I've noticed in Parkinson's versus oncology.

One of the realities of neurological disease is that it does generally progress the over a long time period.

And because of that, you're typically only seeing your doctor for half an hour every few months, if you're lucky.

And the time between those appointments, it's really... helpful to be able to frame what's happening in that half hour visit that you have with your doctor.

And so having something that is printed in front of you that objectively shows what happened over the last three or six months is an incredibly helpful tool to have to be able to give a better picture of your disease over time.
And, you know, Parkinson's has always been, I guess, called a boutique disease because everybody, you have similar symptoms, but everybody experiences things differently.
And I think the nice thing about using Strive PD and Guardian is that it can help your doctor look at when you're having your tremors or when you're having dyskinesias.
So it's actually, I guess the way I'm looking at it is it really is taking data and helping them use precision medicine to give you the best quality of life.
I guess people... a lot of times get nervous when what's going to happen with this data or how can this data be used for clinical research or new drug development? Because maybe there's a lot of people out there that don't necessarily want to participate in a clinical trial and take a medication, but if the data can be used to help advance Parkinson's research, I think people might be a little bit more open to that.
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