The Las Vegas Public Affairs Show September 26, 2026

So for those who don't know the organization, what is the National Bleeding Disorders Foundation?

Sure, so the National Bleeding Disorders Foundation is the nation's oldest organization that works with inheritable bleeding disorders.

And so an inheritable bleeding disorder basically means it can be passed on through your genetics, right? So our organization has been around for over 75 years nationwide, and our goal and mission is to find a cure for inheritable bleeding disorders.

And in Nevada, what we do is we're not researching trying to find a cure, but we provide education, support, social opportunities, and financial assistance to individuals with inheritable bleeding disorders.

Okay.

And how common are bleeding disorders in Nevada?

So nationwide there, we know that the statistics because of genetics, it's a two to 3% of the population have a bleeding disorder.

In Nevada, we are aware of, on our records, we have just about a thousand families that we're aware of.

A lot of times bleeding disorders go underdiagnosed or undiagnosed.

So we know there's more than that because our population size, but that's how many we know of for sure.

Yeah, okay.

So the National Foundation's been around for 75 years, and what about the Nevada chapter specifically?

Sure.

We are almost to our 40th anniversary.

So we've been around since the 90s.

We were started by a nurse who had von Willebrand's disease, which is the most common inheritable bleeding disorder.

And so she started the chapter as a way to provide resources for individuals who have bleeding disorders.

And she was a pioneer in the country, particularly when it came to getting von Willebrand's disease diagnosed.

so von willebrand's disease is the most common bleeding disorder what other bleeding disorders are there

so the one that most people if they've heard about a bleeding disorder have heard about is hemophilia so that one is not the most common but it is the most well known because it has we've known about its existence for a really long time it used to be called the royals disease So, for example, Queen Victoria had hemophilia in her family.

The last czar of Russia also had hemophilia in his family.

So we've known about hemophilia a really long time.

It's just not as common in the population as von Willebrand's disease.

Interesting.

Okay.

So for those who don't know the organization, what is the National Bleeding Disorders Foundation?

Sure, so the National Bleeding Disorders Foundation is the nation's oldest organization that works with inheritable bleeding disorders.

And so an inheritable bleeding disorder basically means it can be passed on through your genetics, right? So our organization has been around for over 75 years nationwide, and our goal and mission is to find a cure for inheritable bleeding disorders.

And in Nevada, what we do is we're not researching trying to find a cure, but we provide education, support, social opportunities, and financial assistance to individuals with inheritable bleeding disorders.

Okay.

And how common are bleeding disorders in Nevada?

So nationwide there, we know that the statistics because of genetics, it's a two to 3% of the population have a bleeding disorder.

In Nevada, we are aware of, on our records, we have just about a thousand families that we're aware of.

A lot of times bleeding disorders go underdiagnosed or undiagnosed.

So we know there's more than that because our population size, but that's how many we know of for sure.

Yeah, okay.

So the National Foundation's been around for 75 years, and what about the Nevada chapter specifically?

Sure.

We are almost to our 40th anniversary.

So we've been around since the 90s.

We were started by a nurse who had von Willebrand's disease, which is the most common inheritable bleeding disorder.

And so she started the chapter as a way to provide resources for individuals who have bleeding disorders.

And she was a pioneer in the country, particularly when it came to getting von Willebrand's disease diagnosed.

so von willebrand's disease is the most common bleeding disorder what other bleeding disorders are there

so the one that most people if they've heard about a bleeding disorder have heard about is hemophilia so that one is not the most common but it is the most well known because it has we've known about its existence for a really long time it used to be called the royals disease So, for example, Queen Victoria had hemophilia in her family.

The last czar of Russia also had hemophilia in his family.

So we've known about hemophilia a really long time.

It's just not as common in the population as von Willebrand's disease.

Interesting.

Okay.