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Let's Talk MND

Let's Talk MND - Todd Johnson

Jul 11, 2026 · 47 min · 12 segments

In this episode, Todd Johnson shares his personal journey with MND, the challenges of diagnosis, and his passionate advocacy for improved care and innovation in the sector. Todd is also the Chair on…

In this episode, Todd Johnson shares his personal journey with MND, the challenges of diagnosis, and his passionate advocacy for improved care and innovation in the sector. Todd is also the Chair on MND Victoria Discover insights on care gaps, technological opportunities, and how community and collaboration can make a difference.

In this episode, Todd Johnson shares his personal journey with MND, the challenges of diagnosis, and his passionate advocacy for improved care and innovation in the sector. Todd is also the Chair on…

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Speakers: Todd JohnsonGuestJane SimpsonHost

Top entities: Motor neuron disease×70 National Disability Insurance Scheme×2 FightMND English×2 Australia×5

Show signals: SuitabilitySafeBiasNot politicalAudience≈124 followers

Podcast Opening & Mission0:00 – 0:28

Jane SimpsonHost

0:00

Hello, I'm Jane Simpson.

Jane SimpsonHost

0:03

I began the Let's Talk MND podcast after my husband Robert was diagnosed with MND and he died 10 months later.

Jane SimpsonHost

0:11

This podcast has built an MND family.

Jane SimpsonHost

0:14

We share real stories from people living with MND, those who love them.

Jane SimpsonHost

0:19

and we learn about research and care in plain English.

Jane SimpsonHost

0:23

I'm not an expert, just someone with lived experience, and together we are stronger.

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Motor neuron diseaseEntityDisorder
98%70 mentions
National Disability Insurance SchemeOrganizationGovernment agency
93%2 mentions
FightMNDOrganizationNot-for-profit
89%1 mention
EnglishEntitySpoken language
84%2 mentions
AustraliaCountryCountry in Oceania
80%5 mentions
AlaskaAdministrative AreaUS state
66%2 mentions
BaliAdministrative AreaIsland in Indonesia
66%2 mentions
CanadaCountryCountry in North America
66%2 mentions
MaldivesCountryCountry in South Asia
66%2 mentions
VietnamCountryCountry in Asia
66%2 mentions
CanberraDefense EstablishmentCapital of Australia
52%2 mentions
Little Company of Mary Health CareCompanyCompany
48%2 mentions
EuropeContinentContinent
43%2 mentions
ChinaCountryCountry in East Asia
36%1 mention
YouTubeWebsiteVideo sharing company
36%1 mention
PolandCountryCountry in Europe
30%1 mention
InstagramSoftware ApplicationSocial networking service
25%1 mention
FacebookSoftware ApplicationSocial networking service
20%1 mention
iPadProduct ModelMobile phone
16%1 mention
GmailWebsiteWeb site
11%1 mention
PulleyEntity
7%1 mention
United KingdomCountryCountry in Europe
2%1 mention

Society
HealthcareHealth
DiseasesHealth
CaregivingFamily > Family Dynamics > Support Systems
Support ServicesHealth > Healthcare > Patient Care
Motor Neuron DiseaseHealth > Diseases > Neurological Disorders
Patient ExperiencesHealth > Diseases > Neurological Disorders > Motor Neuron Disease
Disability AwarenessSociety > Health Advocacy
Family DynamicsFamily
NutritionHealth
Neurological DisordersHealth > Diseases
Patient CareHealth > Healthcare
Family HealthFamily > Family Dynamics > Support Systems > Caregiving
Dietary ManagementHealth > Nutrition
Health AdvocacySociety
Support SystemsFamily > Family Dynamics
Health
Family
Community SupportSociety > Health Advocacy > Disability Awareness
Patient RightsSociety > Health Advocacy > Disability Awareness > Community Support
Care CoordinationHealth > Healthcare > Patient Care > Support Services
Diet for Chronic IllnessHealth > Nutrition > Dietary Management
Quality of LifeHealth > Nutrition > Dietary Management > Diet for Chronic Illness

Podcast Opening & Mission0:00 – 0:28

Jane SimpsonHost

0:00

Hello, I'm Jane Simpson.

Jane SimpsonHost

0:03

I began the Let's Talk MND podcast after my husband Robert was diagnosed with MND and he died 10 months later.

Jane SimpsonHost

0:11

This podcast has built an MND family.

Jane SimpsonHost

0:14

We share real stories from people living with MND, those who love them.

Jane SimpsonHost

0:19

and we learn about research and care in plain English.

Jane SimpsonHost

0:23

I'm not an expert, just someone with lived experience, and together we are stronger.