Aug 24, 2026 · 44 min · 10 segments
For the second time in just a few months on this podcast, we heard the story of a Fungal Infection that attacked a child who was in treatment for Acute Lymphoblastic Leukemia and this infection could…
Alyssa AguilarGuest
Mark LevineHost
To honor the memory of your beloved Lola, you started the Lola's Butterfly Effect Foundation.

How difficult was it for you to motivate yourself to begin a nonprofit, which is not an easy thing to accomplish?

It's been a pivotal part in my healing process, and I don't think that I could have gotten through it as easily if I didn't have that or a way to give back.

It's been a place for me to hold my grief and my love for Lola and help other children.

There was a point when we were in the hospital that Lola had mentioned wanting to give toys to kids because she knew how happy it made her.

And you were certainly granting her the wishes that she would have had as far as that is concerned.

Now, butterflies, how do they fit into the equation of the name of the foundation?

So the very first instance we had when we went into when she first got diagnosed, we went to she had to go to the ICU because of how bad she how bad of shape she had been and she needed immediate care.

One of our ICU nurses had, it was Halloween night, so she was dressed as a monarch butterfly.

But looking back at like the circle of how things happened, it's just so strange.

I know some cultures believe that butterflies are our loved ones visiting us.

And that's not the first time I've heard that people have said butterflies are visiting people in that situation.

To honor the memory of your beloved Lola, you started the Lola's Butterfly Effect Foundation.

How difficult was it for you to motivate yourself to begin a nonprofit, which is not an easy thing to accomplish?

It's been a pivotal part in my healing process, and I don't think that I could have gotten through it as easily if I didn't have that or a way to give back.

It's been a place for me to hold my grief and my love for Lola and help other children.

There was a point when we were in the hospital that Lola had mentioned wanting to give toys to kids because she knew how happy it made her.

And you were certainly granting her the wishes that she would have had as far as that is concerned.

Now, butterflies, how do they fit into the equation of the name of the foundation?

So the very first instance we had when we went into when she first got diagnosed, we went to she had to go to the ICU because of how bad she how bad of shape she had been and she needed immediate care.

One of our ICU nurses had, it was Halloween night, so she was dressed as a monarch butterfly.

But looking back at like the circle of how things happened, it's just so strange.

I know some cultures believe that butterflies are our loved ones visiting us.

And that's not the first time I've heard that people have said butterflies are visiting people in that situation.
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