Yeah.

Especially if she has a bad day for some reason.

We're like, is there another compression? What do we do? And we're very watchful and I'm thinking, what have you done or not done? And, you know, analyse everything.

it's still quite trauma triggering more so than just oh you've probably got a cold and you know take some Panadol and have a lemon honey drink and you'll be sweet you know it's very different now living with that as her a past experience yeah and knowing if there was another compression Health New Zealand still have

When the mention of an EDS diagnosis has come up, the system just goes, no, we don't have enough knowledge.

That's why we will keep talking about it, because of the injustice for the people who can't raise their voice on it easily.