Jun 29, 2026 · 47 min · 12 segments
Hello, and welcome to this episode. I'm speaking with Stephanie who had her TFMR in the 1990's. We really wanted to know what may have been different then, and maybe more crucially, how does this…
Yeah, well, it was my first pregnancy.
So I was going for my 20 week scan.
And I do remember, even though it was 30 years ago, hey, I remember it as if it was yesterday and the morning.
I was so happy, very excited, so excited that I'd actually invited my parents down.
So I was living in Essex.
And I just thought I want them to share in some of that joy.
And then when I went in to actually have the scan, I remember feeling slightly disappointed that the sonographer seemed quite quiet and non-demonstrative.
I asked if my parents could come in.
And that was the point when I realized that maybe something wasn't right because she just said, no, not at the moment, carried on and then said, I need to go and speak to someone.
And at that point, I just knew I just had this feeling just from the look on her face.
And she went out, she got, I don't know whether it was a doctor or a more senior sonographer at the time, but someone came in, spoke to me and said, look, your baby's not moving.
Your baby's not moving around as much as we would expect.
And there's a problem with the blood flow from
the
heart.
There was something they could see in terms of blood flow.
And, yeah, I just couldn't believe it.
I don't know.
I just could feel my stomach sink.
The whole world felt like it was spinning.
I just...
I just had this feeling that there was something really seriously wrong.
And I think the waiting, so they basically felt there was potentially something wrong with the heart.
So we were referred to Guy's fetal cardiology unit.
Yeah, well, it was my first pregnancy.
So I was going for my 20 week scan.
And I do remember, even though it was 30 years ago, hey, I remember it as if it was yesterday and the morning.
I was so happy, very excited, so excited that I'd actually invited my parents down.
So I was living in Essex.
And I just thought I want them to share in some of that joy.
And then when I went in to actually have the scan, I remember feeling slightly disappointed that the sonographer seemed quite quiet and non-demonstrative.
I asked if my parents could come in.
And that was the point when I realized that maybe something wasn't right because she just said, no, not at the moment, carried on and then said, I need to go and speak to someone.
And at that point, I just knew I just had this feeling just from the look on her face.
And she went out, she got, I don't know whether it was a doctor or a more senior sonographer at the time, but someone came in, spoke to me and said, look, your baby's not moving.
Your baby's not moving around as much as we would expect.
And there's a problem with the blood flow from
the
heart.
There was something they could see in terms of blood flow.
And, yeah, I just couldn't believe it.
I don't know.
I just could feel my stomach sink.
The whole world felt like it was spinning.
I just...
I just had this feeling that there was something really seriously wrong.
And I think the waiting, so they basically felt there was potentially something wrong with the heart.
So we were referred to Guy's fetal cardiology unit.
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