TFMR Grey Diagnosis (T21): UK Panel

Okay.

Thank you, Sharon.

I mean, this is why I was saying just moments ago about how, you know, the stats and how...

I guess, you know, I don't want listeners who've maybe had one TFMR thinking that, you know, oh, my God...

There's already a lot of anxiety, but we have had guests on here who have had multiple TFMRs.

It does happen.

Of course, it's rare.

But I think it does just make this whole thing about, you know, once you are that stat, I can remember feeling like this.

It's like, well, I don't really care about the, you know, I've had miscarriages as well, like one in four miscarriages.

It's like, why, why, you know, why me? So I think that's what we're sort of touching on here is the why me aspect.

There's a lot in there to unpack.

I mean, I've written down listening to you, Sian, as well.

You know, this T21 is a spectrum diagnosis.

This is what we call the grey diagnosis.

I'm doing the air quotes right now for the listeners.

The grey diagnosis.

It's a spectrum diagnosis.

Doctors are not able to tell us how this baby's life will look with the diagnosis they have.

And in this case, we're talking about T21.

And Sian, I was really interested in how you said, you know, that the fact that Chase had high drops, there was a relief there because high drops, so high drops is where the body is filling with fluid.

And that fluid takes up the space where the organs should be taking the space and growing.

And so they stop the organs from growing.

Just this is for the listeners.

I know a lot of our listeners will understand what high drops is, but... just so they know.

And so, you know, for example, the lungs will be underdeveloped and babies can't survive without proper lung development.