The Right to Ordinary with Inclusion Ireland
Sep 7, 2026 · 31 min · 11 segments
Why should it cost more to live an ordinary life simply because you are disabled? Disabled people often face additional costs for things that non-disabled people can take for granted – from…
Amy HassettGuest
Derval McDonaghHost
Fiachra O'ConnorGuest
You mentioned a few things there, Amy, about, you know, even some of the supports that are available, you know, and I'm often struck by this.

One is a person with lived experience of intellectual disability who recently got married and, you know, they're in part time paid employment, but now they're being means tested against, you know, with their partner's income also being included.

And that's again, they're devastated that their disability allowance may be affected, etc.

And then we had a family member calling us recently who said that they're allowed work 18.5 hours a week, but actually their job wants them to do 21 hours.

Like they're not asking to hold on to the full carers allowance, but they're saying, could it be tapered a little bit? But it's either you work 18.5 hours or you don't work at all.

So it's the inflexibility sometimes in the supports that are available as well.

And again, that call to a bit of imagination around that, a bit of creativity and a bit of being kind of more focused on how people really live their lives and in different ways.

What would you advise our members and listeners to do to make sure that this issue gets the attention it deserves in the lead up to budget now on the 6th of October?

I think we need to really focus on this because, you know, there was a lot of talk about the cost of disability earlier on in the year in kind of the period between January and May.

There was some fantastic campaigning, I guess, highlighting that in budget 2025, we saw some of the kind of emergency payments that were helping people with everybody, everybody with the costs of living were, I guess, not going to be continued.

And there was a fantastic campaign to highlight the specific impacts that that was having on disabled people.


I think people are kind of maybe possibly taking their foot off the gas a little bit.

And we need to focus on what we want that to look like, what do we want that to feel like, and what do we want, what kind of a process do we want that to be part of? So I think we really need to keep a pressure on government, on legislators, on TDs, on opposition TDs and parties, and keep talking about it in the media and on social media and when we're directly talking to politicians.

Because one of the things we are seeing is that because the government has kind of said that they're going to do something, People are focusing on other things and we need to pull their attention back and say, no, no, no, this has to be just the start.

But also after that point, that needs to be treated as the first step, not the final step.

You mentioned a few things there, Amy, about, you know, even some of the supports that are available, you know, and I'm often struck by this.

One is a person with lived experience of intellectual disability who recently got married and, you know, they're in part time paid employment, but now they're being means tested against, you know, with their partner's income also being included.

And that's again, they're devastated that their disability allowance may be affected, etc.

And then we had a family member calling us recently who said that they're allowed work 18.5 hours a week, but actually their job wants them to do 21 hours.

Like they're not asking to hold on to the full carers allowance, but they're saying, could it be tapered a little bit? But it's either you work 18.5 hours or you don't work at all.

So it's the inflexibility sometimes in the supports that are available as well.

And again, that call to a bit of imagination around that, a bit of creativity and a bit of being kind of more focused on how people really live their lives and in different ways.

What would you advise our members and listeners to do to make sure that this issue gets the attention it deserves in the lead up to budget now on the 6th of October?

I think we need to really focus on this because, you know, there was a lot of talk about the cost of disability earlier on in the year in kind of the period between January and May.

There was some fantastic campaigning, I guess, highlighting that in budget 2025, we saw some of the kind of emergency payments that were helping people with everybody, everybody with the costs of living were, I guess, not going to be continued.

And there was a fantastic campaign to highlight the specific impacts that that was having on disabled people.


I think people are kind of maybe possibly taking their foot off the gas a little bit.

And we need to focus on what we want that to look like, what do we want that to feel like, and what do we want, what kind of a process do we want that to be part of? So I think we really need to keep a pressure on government, on legislators, on TDs, on opposition TDs and parties, and keep talking about it in the media and on social media and when we're directly talking to politicians.

Because one of the things we are seeing is that because the government has kind of said that they're going to do something, People are focusing on other things and we need to pull their attention back and say, no, no, no, this has to be just the start.

But also after that point, that needs to be treated as the first step, not the final step.
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