Kelly Mahler Interoception Autism and Toileting

In this episode of The Unfiltered Autistic Podcast, Amanda McGuinness is joined by internationally recognised occupational therapist, researcher and interoception specialist Kelly Mahler OTD, OTR/L, FAOTA for an important conversation about Autism, interoception, toilet learning, regulation, bodily autonomy and felt safety.Kelly challenges us to think differently about what is happening when an Autistic child or adult experiences difficulties with toileting. Rather than beginning with the toilet itself, Kelly explains why we need to consider the whole person, including their nervous system, internal body signals, sensory experiences, previous experiences of pain and whether their body feels safe.One of the central messages of this conversation is that toilet learning begins with felt safety. Kelly discusses how stress can affect our connection with internal body signals and why supporting regulation and safety within the body and bathroom environment may need to come before expectations around using the toilet.Amanda and Kelly also explore how previous experiences of constipation, painful pooing or other distressing experiences can continue to influence the body's response. As Kelly explains, sometimes a past experience can still be “living in the body”, requiring patience, safety and opportunities to develop new experiences rather than increased pressure or compliance.The conversation explores:What interoception is and why it mattersInteroception and AutismInteroception within toilet learningWhy felt safety and regulation are foundationalConstipation, painful elimination and the body's memory of previous experiencesMoving away from compliance-based approachesSupporting bodily autonomy and trusting what the body communicatesWhy saying “no” can itself represent listening to the bodyUnderstanding and believing individual internal experiencesInteroception and non-speaking Autistic peopleRecognising communication beyond spoken languageSupporting people to develop curiosity about their own body signalsWhy different people can experience the same sensation very differentlyKelly also introduces her new children's book, Noticing My Body Signals: A Science Lab Adventure, co-authored with Madeline Mahler. The book is the first in a three-part journey reflecting Kelly's Notice, Connect, Regulate interoception framework and supports children to explore their individual body signals through curiosity and experimentation.About Kelly MahlerKelly Mahler, OTD, OTR/L, FAOTA is an occupational therapist, researcher, author and international speaker with 20 years of experience supporting school-aged children and adults.Kelly earned her Doctorate in Occupational Therapy from Misericordia University and is an adjunct faculty member at Elizabethtown College and Misericordia University. She is co-principal investigator on several research projects exploring areas including interoception, self-regulation, trauma and Autism.Kelly has received multiple awards for her work, including the 2020 American Occupational Therapy Association Emerging and Innovative Practice Award, and has authored numerous resources advancing understanding of interoception and regulation.This episode offers an important reframing for parents, Autistic people, occupational therapists, educators, SNAs, early years professionals and anyone supporting Autistic children or adults with interoception or toilet learning.Find out more about Kelly Mahler and her interoception resources:Kelly Mahler's official website