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Tusiata Avia

Tusiata Avia

New Zealand poet

Aug 25, 2026

19:31
I think there's some amazing disability scholars who write about what we categorize as disabled as what is classified as a normal body and what is classified as abnormal and how that can shift over time and thinking about how, for example, my eyes are not part of my disability because I have... glasses and we've accepted glasses as a normal assistive device that doesn't and yet there'll be something else um that could receive that same for lack of a better term norming but but hasn't i feel like that connects also to what we deem what and who we deem worthy of care um and what care looks like
20:25
and it's funny you know because when i Had that epilepsy accident or injury and I broke both my feet.
20:37
I had to go into an old people's home and there is a group, an unworthy group.
20:43
It's a bunch of old people.
20:46
They've been made unworthy in this place.
20:50
society so much so that we lock them away so we can't see them or have to deal with them.
20:56
Living in there for 10 weeks with my two broken feet was a really interesting and sad experience.

11 MINS LATER

31:51
um yeah um i know that um you don't have all day um so i need to keep an eye on the time uh the last question i have for you today is um any reading recommendations for listeners but is there anything else you'd like to say before i get to that based on our conversation
2:43
I wonder when you were writing about your father's death, Was there an urge? Did you have to resist an urge to flatten him? Perhaps somehow to see him in fewer dimensions, which can come with eulogy.
3:03
No, no I don't think so at all.
3:07
I think because I wrote it very fast and I wrote it when he was really with me and I'm kind of quite literal because I felt as if He was literally in my body.
3:31
And I know that sounds a bit, you know, kind of airy-fairy, but I did really have that sense that he was... you know sometimes when somebody passes and maybe some listeners have had this experience that you can have a very strong experience which is a physical experience of the person being there um just like you have the experience of someone sitting beside you um And when you close your eyes and you can't see them, you still, you know, you feel them there.
4:22
That's what it was like with Dad.
4:26
But as time went on in that first year, I had an experience of getting quite ill and losing a lot of weight really fast.
4:41
And... having this strange experience, like losing weight really fast and seeing my bones rise up through my body.
6:03
How do you think of birth and death? What does it mean to you?

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