S
Sena Gotjuk
1
APPEARANCES
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Oct 7, 2026
7th Oct 26
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6:11Peter GrecoHOST
Well, what about some of the research that's going on then? What sort of areas are you researching in and how's that kind of going? Yeah, so we've
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6:21Sena GotjukGUEST
First, we'd like to know more about these conditions, the impact that they have on everyday symptoms and living.
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6:28Sena GotjukGUEST
So we've got our Venture Registry, and that's for anyone with an inherited retinal disease.
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6:33Sena GotjukGUEST
They can sign up just to be informed of treatment trials as they become available, but also for us to know a little bit more about how these conditions affect people and how they change over time.
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6:44Sena GotjukGUEST
So Venture is a really useful resource that we've got, and it's under the management of Dr. Cece Britton-Jones and Dr. Tom Edwards.
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6:52Sena GotjukGUEST
The other projects that we've got are more targeting the treatment or the therapeutic avenue.
