Sally Jackson
Co-founder and Honorary Board Member of KIF1A.ORG, the patient-led foundation advancing treatment for KIF1A-Associated Neurological Disorder, which she and her husband Luke Rosen founded after daughter Susannah's diagnosis.
1
APPEARANCES
1
PODCASTS
Aug 26, 2026
Sally JacksonGUEST
Um, and we had a lot of sort of moments where it was, um, oh, she was just, just scraping by for those milestones.
Sally JacksonGUEST
And then, oh, like, you know, three days into the point where I was like, "Oh, I wonder if she would do it.
Sally JacksonGUEST
She would roll." Or we, you know, we even had a, a, you know, PT come in and do an evaluation, and she goes, "Well, let's just try putting this toy in this direction and see if we can get her to roll that way and actually make it happen." And before we could get worried, she was there and she made it.
Sally JacksonGUEST
So we had a lot of these sort of, great, I think we're gonna, I think we're gonna be okay.
Sally JacksonGUEST
You know, I, I, we'd done, um- With some research into this, uh, re- RIE, Resources and Infant Education, that was really about sort of, um, empowering your baby and talking to them all the time and making sure that they were doing things on their own timeline.