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Nona Baker
Co-Chair of MPN Voice, a UK charity for myeloproliferative neoplasms (MPNs), and an ET/PV patient advocate.
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APPEARANCES
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PODCASTS
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Oct 12, 2026
A Patient’s Journey With Essential Thrombocythemia and Polycythemia Vera
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0:34speaker_1HOST
Describe your diagnostic journey.
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0:41Nona BakerGUEST
The children used to cope with it with Mom's mushy peas in the fridge, and, you know, my feet were so painful, and we lived with, with horses, and I had to cart around hay and all that sort of thing with these, with these, these s- frozen peas strapped to my, my feet.
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0:57Nona BakerGUEST
[laughs] Anyway, I was sent to an orthopedic surgeon to begin with, and the orthopedic surgeon, uh, sent me off to have extremely expensive insoles put in my shoes.
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1:09Nona BakerGUEST
So then I got sent to a rheumatologist, and the rheumatologist took some blood, and he then ...
7 MINS LATER
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8:17speaker_1HOST
Mm-hmm