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Nona Baker

Co-Chair of MPN Voice, a UK charity for myeloproliferative neoplasms (MPNs), and an ET/PV patient advocate.

Oct 12, 2026

speaker_1HOST
0:34
Describe your diagnostic journey.
0:36
Uh, it took me some time.
0:38
I presented with very painful feet.
0:41
The children used to cope with it with Mom's mushy peas in the fridge, and, you know, my feet were so painful, and we lived with, with horses, and I had to cart around hay and all that sort of thing with these, with these, these s- frozen peas strapped to my, my feet.
0:57
[laughs] Anyway, I was sent to an orthopedic surgeon to begin with, and the orthopedic surgeon, uh, sent me off to have extremely expensive insoles put in my shoes.
1:07
That made no difference at all.
1:09
So then I got sent to a rheumatologist, and the rheumatologist took some blood, and he then ...

7 MINS LATER

speaker_1HOST
8:17
Mm-hmm

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