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Neil A. Shneider

Neil A. Shneider

Researcher

Aug 5, 2026

3:55
I, and why don't, um, why don't, why don't we talk about that for just a minute? What, what is it like for you to be able to say, "I have some hope to give," as opposed to, "I really don't"?
4:13
Yeah.
4:14
Yeah.
4:15
Well, I mean, I, I think it's important, uh, to say that, um, ALS still in twenty twenty-six is a deadly disease, um, for the, for the majority of, of patients, um, who receive that diagnosis.
4:31
Um, and, um, you know, it's a, it's, it's a painful thing to tell a patient that they have ALS.
4:40
Um, and, um, it is, um, still standard of care in ALS for the most, for most of our patients, that the care is supportive care.
4:52
You know, we pr- they can't breathe, we give them a ventilator.

9 MINS LATER

14:18
[chuckles]
27:50
Is that right?
27:52
Yeah, and as he says, stable, if not a little bit better than when we first started.
27:58
So many things to say here, though, Stan.
28:00
I mean, Bill is perhaps amongst the most colorful of his family members, but there are many colorful members of this Bauer family that I've met.
28:14
We've now treated, I think, a dozen members of his family, maybe 14 soon.
28:22
And it really is an amazing American story.
28:25
This is a family that came to the United States in the 19th century.

6 MINS LATER

34:45
But to have been at the leading edge of ALS, had the opportunity to work with Jason Fuchin and SOD1, the first actually truly effective treatments for ALS, it must be incredibly exciting and gratifying.

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