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Mary Wojnaroski

Mary Wojnaroski

Clinical psychologist at Nationwide Children's Hospital and Assistant Professor of Pediatrics at Ohio State, specializing in neurodevelopmental disabilities and co-investigator on the Inchstone Project.

Sep 20, 2026

3:36
So can you describe what sorts of challenges those people have and why it's important to monitor progress in that group? Why it's especially important to monitor progress?
3:50
Sure.
3:50
So developmental and epileptic encephalopathy, we use that term for individuals who have functional impairments or difficulties that are driven both by an underlying cause, like a genetic disorder or some sort of structural brain difference, and also have intractable epilepsy or seizures that are impacting their functional ability.
4:14
So that's the term that we use to describe Those group, that group of individuals, they are often impacted by a lot of different things.
4:22
So they don't just have developmental delays and seizures, but maybe also motor difficulties or respiratory involvement, feeding issues, sleeping issues.
4:35
So it's really... a disorder that impacts lots and lots of different body systems and areas of functioning.
4:41
And they are developing.

21 MINS LATER

25:50
What's the next step for you guys?

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