
Martine Elias
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Oct 9, 2026
Beyond Asking the Doctor: Bringing the Patient Voice Into Clinical Research
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32:03

Ursula MannHOST
Can you help explain why you feel that's so important to represent what you're doing in your disease, but also work with broader groups?

Martine EliasGUEST
When you look at health policies that are being implemented today in terms of access and implementation of new and innovative therapies that are getting more and more complex, it's not really about the disease itself, but it's about how you bring the new technology to the patient and what kind of resources and knowledge and structural changes that need to be made to the healthcare system to where there's a lot of gaps and there's a lot of things that fall through the cracks in my mind that affect not just myeloma, but all sorts of other diseases as well.

Martine EliasGUEST
So to be able to make a change at the bedside of the patient, you really have to look at policies that are developing and how you get there.

Martine EliasGUEST
A lot of these policies affect different cancer patients and population in exactly the same way.

Martine EliasGUEST
So by bringing various cancer representatives and advocates to the table, then you're able to educate them, empower them.

Martine EliasGUEST
empower them, engage them, and then involve them in some policy changes that are meaningful.

Martine EliasGUEST
So if you can change what happens upstream really early in the process, I always like to use the metaphor of you go where the snow melts.
13 MINS LATER

Ursula MannHOST
And what excites you most about the future of Myeloma Canada? What would you like to share with people?