L
Lia Crotti
Researcher
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APPEARANCES
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OCT 5
Oct 5, 2026
ERNs on Air: The Sudden Cardiac Death Letter and patient partnership in ERN GUARD-Heart
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5:07Nora LazaroHOST
How do healthcare professionals deal with this situation now that you have the letter? And how do you hope it will influence and change the conversations between healthcare professionals and families in those first hours and days following a sudden cardiac death?
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5:24Lia CrottiGUEST
So I think this is a very important initiative because there are decisions that should be made in, uh, the very first moments that are the most difficult ones.
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5:36Lia CrottiGUEST
But this is something that can really change, uh, also the follow-up and save other lives, uh, in terms of family member, because performing the autopsy and sometimes molecular autopsy is the only way to make a correct diagnosis, and so to be able to evaluate all family members in a proper way.
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6:00Lia CrottiGUEST
So if families are informed properly about this, there is no one that refuses to do the autopsy.
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6:18Lia CrottiGUEST
And also the physicians sometimes are in difficulties, uh, in that moment to try to explain in the proper way and to try to make the families understanding correctly why it is so important.
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6:33Lia CrottiGUEST
So I think that this letter could really change and support, uh, this important decision, uh, in that very difficult moment.
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8:52Nora LazaroHOST
So Leah, from your perspective as a healthcare professional, what made this collaboration successful?