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Letizia Leocani

Experimenter

Aug 12, 2026

9:40
So we're not even always talking about the same, the same thing, um, which adds complexity as well.
9:47
Yes.
9:47
And, um, actually now people with MS would like to feel supported and not monitored.
9:54
For this reason, we run a survey organized with questions, organized together with people with MS from our PROMS initiative that was offered through the main, uh, websites of, uh, the MS societies.
10:11
And over 2,000 people, uh, responded to the survey about the use of digital technology.
10:17
And, uh, interestingly, they are not focused on one type of monitoring only.
10:23
They would like to have the three types, like passive monitoring, active monitoring with tests, and also questionnaires to have a 3D view of, uh, their own symptoms.

17 MINS LATER

28:01
Um, and being able to detect disability worsening in a timely fashion, uh, is a major hurdle that I think these technologies will quickly help us overcome.

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