Lee shared some of the ways her organization helps make those connections possible.

Our website is an excellent resource to help patients with education and supports and learning about their diagnosis.

We offer resources that can be had through contacting us on our helpline.

reaching out to us through our chat line, through our website and email.

We offer in-person patient and family conferences.

This is a wonderful opportunity to be able to gain face-to-face access to experts, be able to ask your own personal questions, and be able to meet others.

There's nothing better than being able to sit down with another patient or a family member who truly understands what you're going through.

It's also about understanding the impact of living with the disease day after day.