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Kira Goodman

Kira Goodman

RN, Project Director for Canada's Pediatric Palliative Care Alliance, leading national pediatric palliative care coordination and family support services

Jun 16, 2026

15:15
I mean, I think we don't do a great enough job there, but are there others?
15:19
I think one of the, I remember it was actually Dave and I had talked back towards the beginning of the project and he used some language around optimizing quality of life that I really liked.
15:30
Because I think when we think about quality of life, I tend to be drawn towards the positive quality of life elements.
15:36
And so that's some of what I think we do really well when pediatric palliative care exists.
15:41
is able to be done in a high quality way.
15:43
So we're talking about legacy and memory making kind of happening throughout the course of the illness, trying to find those opportunities for joy and meaning making throughout the course of the illness and not just for the seriously ill person themselves, but for, like you said, their whole ecosystem around them.
16:01
And so I think when we have the resources to do pediatric palliative care in a high quality way, that is something that we are able to do that is really special and that needs to make its way into every single seriously ill person's life.

6 MINS LATER

22:02
Is the Alliance equivalent to what you guys are alluding to as the project? OK, because I think the word project a couple of times, I was just wondering if people might wonder what's the project?

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