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Jonathan Cotter

Jonathan Cotter

CEO and founder of the National Center for Pediatric Palliative Care Homes (NCPPCH) and co-founder of Ryan House pediatric respite home in Phoenix.

Sep 23, 2026

7:49
What would you describe as some of those really significant obstacles that families and pediatric patients face when they're navigating particularly a terminal illness?
8:00
Yeah.
8:00
Well, I think from a payment perspective, and I think where the conversations are today with policymakers and where these models are now kind of fitting in is the aha moment that is literally just happening as we're talking, literally within the last few months to the last year, is that there needs to be a new defined set of licensing and regulation for this kind of care.
8:28
And that it really does not, it should not be created under an existing system.
8:35
And let's, I think where policymakers and people first start to kind of think that when they hear these kind of We've defined a new term that we're calling a pediatric palliative care center as a definition of a model of community-based holistic care.
8:52
And when policymakers are first hearing that term, they naturally think, well, let's build this under the hospice regulations.
9:00
And what we're starting to realize is that we love hospice.

7 MINS LATER

15:55
So what's really needed to improve that access and maybe that policy and reimbursement level and what could happen here to sustain those more community-based infrastructures?

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