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Jantina de Vries

Researcher

Sep 29, 2026

5:41
Dan moet je wel op scholen commitment hebben van scholen dat je dat mag doen, hè?
5:46
Ja, nou, we hebben in alle regio's waarin we actief zijn hebben we heel veel scholen Die graag hun bijdrage leveren.
5:52
Waar we ook vaak al wel een schoolbezoek mochten organiseren.
5:55
Ja.
5:56
En dat mensen dan een ochtendje meekijken en wat horen van een zij-instromer en wat horen van een schoolleider, vaak van HR.
6:03
Maar goed, die scholen die, ja, die kennen ons, dus die kennen Leraar van Buiten.
6:07
En dat maakt dat we gevraagd hebben: we hebben een plannetje.

31 MINS LATER

37:29
Nog één tip.
7:59
I've
7:59
got quite a lot to say about consent, but maybe I can take a step back because I think there's also another question that you're asking, which is why is ethics important in the field of genomics? At least that's what I think I heard you ask as well.
8:11
And I think the field of genomics is really interesting for two different reasons.
8:17
One is it has a really long and very troubled history.
8:21
So we know most people would have some understanding of eugenics, the use of arguments, not genetic science so much, but ideas about genetics that informed really discriminatory practices in many parts of the world and that has evoked such a strong sense I think that still seeds a really strong sense that in the field of when we use genes or genetics in research we must be super cautious because we can also get it wrong and there is real harm that we can do to the world and I think more than any other field in medicine or health science genetics attracts ethical concern and ethical regard.
9:12
So I find that really interesting.
9:15
I think it's also really interesting to think about the way that we often speak about genomics and genetics.

32 MINS LATER

41:03
The second thing that I wanted to say is just, I think what you guys have both touched on is that there's a little bit of a disconnect between um between what genetic like what the understanding of what genetic data is as well and i think that answers the question of is it identifiable you touched on it now you and tina quite well in that i mean if you think about the data that we get from a sequencing platform once you open it you can open it in a text file and it's literally just acs g's and t's in different configurations and in different like combinations um so getting a data file from a patient is not like this is the genetic information of erin kinghorn and here it begins now acgt ac ac you know it's literally just a's and c's and g's so um And I think that also just is a connection that needs to be made and that, you know, it's de-identified, but it also is really difficult to identify that it's Erin Kinghorn in this data file if you're just looking at A's, C's, G's and T's.

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