J
Jane Warbigge
Nurse Information Specialist at United Spinal Association with over 25 years of experience in spinal cord injury care and patient advocacy.
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Jun 15, 2026
Acceptance, advocacy & bladder care: navigating systems without losing yourself | How We Really Feel
50:34
54:27

Sula WindgassenHOST
How do you support people or how do you see people kind of deal with those real barriers and challenges in your community?
J
50:41Jane WarbiggeGUEST
Well, certainly it is a challenge, as we've stated, but, you know, there are things that can help.
J
50:49Jane WarbiggeGUEST
For example, and I just think staying connected, again, staying connected with your community is important.
J
50:57Jane WarbiggeGUEST
For example, some of the spinal cord injury model system centers in the United States will consult with other clinicians.
J
51:05Jane WarbiggeGUEST
They don't give medical advice or opinion, but they may consult with other health care professionals that don't specialize in spinal cord injury or whatever the condition may be, but are willing to give advice.
J
51:21Jane WarbiggeGUEST
So certainly, you know, it is a challenge, but there are maybe workarounds sometimes.

Sula WindgassenHOST
So what simple concrete shifts might someone going through that make to feel a little bit more influence in their kind of bladder or continence care so for