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Edwin Kirk
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Oct 20, 2026
Under-represented groups in databases
15:59

Ian GassiepHOST
And so if we were in the hypothetical world to roll out an all-comers program, would that in some way overwhelm our healthcare system if all we're doing is genetic counselling?
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16:11Edwin KirkGUEST
I mean, I think that's a legitimate concern, that if you were to attempt to do this in a way that involved everyone seeing a genetic counsellor before they had the test and then a follow-up appointment as well, it would be impossible.
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16:26Edwin KirkGUEST
The approach we used to McKenzie's mission was that The information was provided online.
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16:31Edwin KirkGUEST
There was a brief conversation with the person who was making the referral and a short information sheet with a link to a portal and people then did consent online and there were genetic counsellors available for support but most people didn't need to access that.
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16:47Edwin KirkGUEST
And then the people who are identified as carriers, as couples who had an increased chance, were then contacted by a genetic counsellor.
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16:56Edwin KirkGUEST
And there was an appointment, if needed, with a clinical geneticist or other relevant medical specialist.