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Carter Hemion

Carter Hemion

Carter Hemion is a Pacific Northwest-based rare disease patient advocate, writer, and artist who serves as Director of Operations at the Immunocompromised Association and co-hosts the Rare & Real podcast.

Oct 6, 2026

1:30
Carter, I wonder if you could start.
1:31
Thank you.
1:32
My name's Carter Hemion.
1:34
I am 25 years old.
1:36
I am Canadian American living in the Seattle area, but born Washington in the United States.
1:42
I'm a writer, I'm an artist.
1:44
I get to work in the health advocacy space, largely because I have a likely pathogenic variant on my COL5A2 gene, so I have problems with my connective tissue.

27 MINS LATER

28:51
Mm-hmm.

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