
Carol Roberts
President of the PBCers Organization, a PBC patient, liver transplant survivor, and patient advocate based in Rochester, NY.
2
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2
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Oct 5, 2026
Results From the Voice of PBC Patient Survey
0:10
0:19

Carol RobertsGUEST
Um, at the time, I did real- found out that I was, um, actually towards the end stages.

Carol RobertsGUEST
Um, at that time, the first-line treatment for PBC was just introduced as a brand name at that time, and they had never tested it in cirrhotic patients, so they said, "Give it a shot.
Can We Cure PBC? Inside the Race to Stop an Autoimmune Liver Disease | Carol Roberts - President, The PBCers Organization
4:10

Carol RobertsGUEST
Um, my children affectionately called me Bug Woman because if I heard a mosquito, I would have to hunt it down because I figured that was the cause of my itching.
