But yeah, that must have been terrifying at that time when you were finding all this out and you had no idea at age 16 what was going to happen to you health-wise.

Yes, that's right.

So I continued with those checks, and then I had four miscarriages.

It was found for my first pregnancy.

It was a premature delivery.

It was a complicated labour that I was in.

The doctor didn't know why it was such a difficult labour when she was so tiny.

Can you tell me more about your work? Because, Carol, you are founder and coordinator of DES Action NSW, which is an organisation that has been campaigning for support for women like you and their families.