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Bronte O'Donnell

Bronte O'Donnell

Head of the Dementia Data Improvement Unit (Director) at the Australian Institute of Health and Welfare (AIHW), leading national dementia data improvement in Australia.

Sep 21, 2026

Behind the data

Behind the data

Expanding Australia's understanding of dementia by hearing from people living with it

Sep 21 · 16m

Lauren Adcock
Lauren AdcockHOST
2:56
What does it add to Australia's understanding of dementia? The simple
Bronte O'Donnell
Bronte O'DonnellGUEST
3:00
answer is that we have never had national data like this before.
Bronte O'Donnell
Bronte O'DonnellGUEST
3:04
Australia has good information about how many people are living with dementia, deaths from dementia, health system use and aged care.
Bronte O'Donnell
Bronte O'DonnellGUEST
3:13
But what we've lacked is a national picture of daily experiences.
Bronte O'Donnell
Bronte O'DonnellGUEST
3:17
This survey gave people living with dementia and carers a chance to tell us directly about their journeys.
Bronte O'Donnell
Bronte O'DonnellGUEST
3:23
And I'd really like to thank them for their time and generosity in participating.
Bronte O'Donnell
Bronte O'DonnellGUEST
3:27
We can now better understand experiences with diagnosis, support services, wellbeing, stigma and care coordination in a way that wasn't previously possible.

10 MINS LATER

Lauren Adcock
Lauren AdcockHOST
13:09
How does the National Centre for Monitoring Dementia bring these different sources of information together? One of the

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