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Bill O'Sullivan

Bill O'Sullivan

ALS patient and advocate living with rare CHCHD10-mutation ALS; featured on n-Lorem Patient Empowerment Program podcast

Jun 17, 2026

20:30
Thursday will be my eighth,
20:33
uh, treatment.
20:34
Uh, this will be the second one at a hundred percent, uh, um, treatment.
20:39
And, uh, so when, uh, I started, I was a little, um, I'll just say, I was a little bit harder to get started because I have some other health issues that, uh, um, require me to take Coumadin.
20:54
So, and so we had to figure out all that.
20:58
And then, uh, um, I couldn't get a, uh, a, um, MRI because I have metal in my body from other art issues.
21:09
So, um, but we figured it all out.

24 MINS LATER

45:09
And you're a part of that revolution, you and your family.

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