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Andre Main

Oct 25, 2026

16:01
And in what's now a peaceful, flower-filled garden, I sat down with Andre Main, who oversees the charity's helpline and used to pick up the phones herself.
16:11
So there's 630,000 people living with epilepsy in the UK.
16:16
About 70% of them are controlled with medication.
16:21
But for that 30% that aren't, there's still that constant worry, I guess, that they don't know when the next seizure is going to happen.
16:32
And just the thought of that can have other ramifications.
16:37
Mental health issues, not wanting to go out because they're scared that a seizure might happen in public.
18:46
How has epilepsy in society changed from when this plot of land that we're sitting on was a colony which was both to help people but potentially to keep them away or keep them out of society and
19:01
I'd like to think that the work that we do helps promote awareness, helps more people understand about the condition and makes people a little bit less judgmental.

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