But I really do rely on you and your knowledge of the community to really help inform some of the things that we're discussing.

Yeah, I think it's so interesting because I think it's it's so important to have both perspectives.

I can't bring some of the knowledge and expertize and experience that you have.

And I think like you talked a little bit about outcome measures, right? Like I think you really provide a great lens and you have that Actual real life experience of working with families is some of your background.

And I think for me, you know, obviously I do have a daughter with Phelan-McDermid syndrome, but it's important to remember that is one person with Phelan-McDermid syndrome.

And so it's really keeping my ear to the ground and really making sure to understand what are all the different families experiences.

And bringing that back to these meetings, these, you know, conversations that we're constantly having with pharma so that we can represent the full spectrum.

understand

And I think people came along and they brought food and the like.

The amount of donations of food, water, fruit, everything has been unbelievable.

Like, I can't even begin to mention the amount of people that dropped off stuff.

O'Donnell's Crisps dropped off a load of stuff.

Irish Water dropped off a ton of water for the fire service.

We had Manila Hotel, twice they came out to drop out food to them.

Miss Ellie's in Clonmel, loads of, I think it was energy bars and fruit they dropped out.

Now, some of what was on social media, I mean, it gives an indication about how profound the fire was, but some of the other stuff was really...