
Alex Spencer
Bereaved mother, holistic therapist, and host of The Functioning Griefster podcast; shares her story of losing her son Declan to Duchenne muscular dystrophy at age 24.
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May 27, 2026
Episode 15 - A mother’s story of joy and grief around her son who lived with Duchenne muscular dystrophy
1:24
1:33
2:00
2:10

Alex SpencerGUEST
So, um, like I said, it was just myself and Declan, and I had always wanted to be a kids' entertainer.

Alex SpencerGUEST
But becoming a mom, uh, quite a bit younger than I anticipated, I decided that it would be better to work with children in like a special needs school, a daycare, with the hope of becoming a hospital play specialist, 'cause I actually wanted to work in the local children's hospice as a play specialist.

Alex SpencerGUEST
He had started school, so I decided I would start my two-year qualification to become a childcare worker and then do my degree.

Alex SpencerGUEST
And while I was doing it, a few things I was noticing that Declan wasn't meeting expected norms or was actually going backwards a little bit.
19 MINS LATER
