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Alex Spencer

Alex Spencer

Bereaved mother, holistic therapist, and host of The Functioning Griefster podcast; shares her story of losing her son Declan to Duchenne muscular dystrophy at age 24.

May 27, 2026

1:19
So would you mind sharing, um, how, how this was for you?
1:23
Of course.
1:24
So, um, like I said, it was just myself and Declan, and I had always wanted to be a kids' entertainer.
1:33
But becoming a mom, uh, quite a bit younger than I anticipated, I decided that it would be better to work with children in like a special needs school, a daycare, with the hope of becoming a hospital play specialist, 'cause I actually wanted to work in the local children's hospice as a play specialist.
1:55
So I had this gorgeous little four-year-old.
2:00
He had started school, so I decided I would start my two-year qualification to become a childcare worker and then do my degree.
2:10
And while I was doing it, a few things I was noticing that Declan wasn't meeting expected norms or was actually going backwards a little bit.

19 MINS LATER

20:50
Um, can you tell us a bit more about that and how it's helped you and others?

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