
Jun 6, 2026 · 20 min · 9 segments
I couldn’t not speak on this subject as it’s sparked conversations and judgements that have been extremely hurtful to the Down syndrome community. Not the choice the couple made, but they statement…
Now, I think this actually happened yesterday, but because the person in question is in America, I think most of the Sen and Down Syndrome community in this country saw it this morning.
Certainly when I saw it anyway, although to be fair, I do lead a granny life and I was asleep by about half nine last night.
So if you don't know what I'm talking about, there is a famous YouTuber who I'm gonna be honest, I haven't heard of, but I know a lot of people have.
He's got a huge following, and a while ago him and his wife announced that they were having a baby, which is obviously lovely.
It was their first baby.
Then they put up a post saying that they'd had the prenatal testing and were told that their baby had a high chance of having Down syndrome.
Now this post is a little confusing because they then go on to reference the fact that the testing that they used, um, somebody was taking them to court because they'd had a incorrect result and all of this.
Anyway, what has happened is that they have decided to terminate their pregnancy, or they have already terminated their pregnancy, and they've put a statement out explaining the reasons why.
Before we get into this, I would like to be extremely clear that I am pro-choice, and I think that they should have the right to make their own decision on what they do based on the information that they had.
What I have an issue with and what a huge portion of the Down Syndrome community have an issue with, is the language that has been used around this, and I guess the discourse that has then followed online.
And it's hard to read, I can't lie, because it's highlighting how much misinformation is still out there, and it's highlighting how many outdated views.
And it's one of those things where, I don't know if you ever do this, it's almost like that analogy of not being able to take your eyes off a car crash.
I actually saw this when I was in work on the radio this morning and I was like, "Oh my God, don't read this, don't read this, don't read this," while reading all of the comments.
And I was like, do you know what? I can't get into this now because I know that it's gonna upset me.
Now, I think this actually happened yesterday, but because the person in question is in America, I think most of the Sen and Down Syndrome community in this country saw it this morning.
Certainly when I saw it anyway, although to be fair, I do lead a granny life and I was asleep by about half nine last night.
So if you don't know what I'm talking about, there is a famous YouTuber who I'm gonna be honest, I haven't heard of, but I know a lot of people have.
He's got a huge following, and a while ago him and his wife announced that they were having a baby, which is obviously lovely.
It was their first baby.
Then they put up a post saying that they'd had the prenatal testing and were told that their baby had a high chance of having Down syndrome.
Now this post is a little confusing because they then go on to reference the fact that the testing that they used, um, somebody was taking them to court because they'd had a incorrect result and all of this.
Anyway, what has happened is that they have decided to terminate their pregnancy, or they have already terminated their pregnancy, and they've put a statement out explaining the reasons why.
Before we get into this, I would like to be extremely clear that I am pro-choice, and I think that they should have the right to make their own decision on what they do based on the information that they had.
What I have an issue with and what a huge portion of the Down Syndrome community have an issue with, is the language that has been used around this, and I guess the discourse that has then followed online.
And it's hard to read, I can't lie, because it's highlighting how much misinformation is still out there, and it's highlighting how many outdated views.
And it's one of those things where, I don't know if you ever do this, it's almost like that analogy of not being able to take your eyes off a car crash.
I actually saw this when I was in work on the radio this morning and I was like, "Oh my God, don't read this, don't read this, don't read this," while reading all of the comments.
And I was like, do you know what? I can't get into this now because I know that it's gonna upset me.
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