The Invisible Toll

On the latest episode of The Bleeding Edge, we're asking a question many people with Glanzmann thrombasthenia (GT) know all too well: How can something so invisible take such a visible toll on your life? Joining host Patrick James Lynch for the first time is new co-host Amy Owen-Wyard, bringing both professional expertise and a deep commitment to the inherited bleeding disorders community. Together, they sit down with patients, caregivers, and leading experts from around the world, including Dr. Kate Khair, Dr. Sutesh Sivapalaratnam, Dr. Guy Young, Dr. Meera Chitlur, alongside patient advocates, Caitlyn Lee, Eliza, Quinn, and caregivers like Stacey McGeown, Connor Snow, and Alexandra Sullivan. Through honest conversations and lived experiences, this episode explores the hidden weight of GT, from chronic fatigue and iron deficiency to delayed diagnoses, emotional exhaustion, and the constant calculations happening behind the scenes. Because the hardest part of living with GT isn't always the bleeding people can see. Sometimes it's everything they can't. Whether you're living with GT yourself, caring for someone who is, or simply looking to better understand the condition, this episode shines a light on the invisible burden so many carry every day. ***Co-Host:***  Amy Owen-Wyard, Community Advocate, CoFounder and CEO of EquiPath Analytics  ***Featuring:*** Stacey McGeowen, Community Advocate, CoFounder and CEO of EquiPath Analytics  Dr. Kate Khair, CoFounder at Haemnet Eliza, Patient Advocate Connor, Community Advocate Alexandra, Community Advocate Dr. Meera Chitlur, Pediatric Hematologist, Children's Hospital of Michigan Dr. Sutesh Sivapalaratnam, Lifespan Hematologist  Quinn, Patient Advocate  Caitlyn, Patient Advocate **Presenting Sponsor:** Hemab Therapeutics, visit hemab.org to learn more #### Show Notes: 1. Bleeding and quality of life in people with Glanzmann thrombasthenia-insights from the Glanzmann's 360 study 2. Management of Glanzmann's Thrombasthenia (webinar) 3. EquiPath Analytics 4. Haemnet   Subscribe: The Bleeding Edge Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok