Sep 30, 2026 · 40 min · 11 segments
In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff sits down with Jenny Nixon, who shares her experience of being diagnosed with both myelodysplasia and acute myeloid leukaemia…
Kate ArkadieffHostOn Christmas Eve 2016, I was diagnosed with myelodysplasia, which led to me having to have my first transplant.
Then in August 2022, I was diagnosed with acute myeloid leukemia, which led to me having to have a second transplant.

And what was kind of happening for you around, like, obviously it was Christmas Eve, but what was happening for you in that December to make you go, I need to go to the doctor? Actually,
I was given the form in October 2015, but through various things, plus the loss of my dad, I didn't get those blood tests done until March 2016.
They came back showing irregularities within my bloods, but nothing to show any sort of condition whatsoever.
And then finally in December that year, I was asked to go to Sydney for a bone marrow biopsy.

And when they were watching your blood test over that time every two weeks, did you have an understanding of the why and what they were looking for or what they
thought? I don't think they had any clear indication themselves until my blood got bad enough for me to be asked to go to Sydney for the biopsy.
So it was a long process of trying to figure out what could be going on because it was going from red to white cells that were playing up and it was just a long process to get a diagnosis.

And were you feeling unwell during that time? No, maybe just a little bit tired, but apart from that, I felt fine.

And to receive that news that you have in fact recovered got something that's quite serious.
On Christmas Eve 2016, I was diagnosed with myelodysplasia, which led to me having to have my first transplant.
Then in August 2022, I was diagnosed with acute myeloid leukemia, which led to me having to have a second transplant.

And what was kind of happening for you around, like, obviously it was Christmas Eve, but what was happening for you in that December to make you go, I need to go to the doctor? Actually,
I was given the form in October 2015, but through various things, plus the loss of my dad, I didn't get those blood tests done until March 2016.
They came back showing irregularities within my bloods, but nothing to show any sort of condition whatsoever.
And then finally in December that year, I was asked to go to Sydney for a bone marrow biopsy.

And when they were watching your blood test over that time every two weeks, did you have an understanding of the why and what they were looking for or what they
thought? I don't think they had any clear indication themselves until my blood got bad enough for me to be asked to go to Sydney for the biopsy.
So it was a long process of trying to figure out what could be going on because it was going from red to white cells that were playing up and it was just a long process to get a diagnosis.

And were you feeling unwell during that time? No, maybe just a little bit tired, but apart from that, I felt fine.

And to receive that news that you have in fact recovered got something that's quite serious.
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