Jun 3, 2026 · 54 min · 11 segments
In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff sits down with Sam and his partner, Sally, to explore the reality of receiving and living with a blood cancer diagnosis as a…
Sam HaywoodGuest
Sally McNamaraGuest
Kate ArkadieffHost
There isn't that same threshold crossing that a lot of people, you know, that we had to go through.

Life still looks as though it materially it seems to be the same.Which I think is difficult to comprehend if you're not actually intimately involved.

How was it for you, Sally? Would you agree with that as well? Is that your take on it?

I've thought a lot about the emotional experience and how it's sort of like you get given this medical, physical treatment plan, and even mental health these days is more addressed, and there's not so much...

It just felt like there was no roadmap on the emotional experience, which I'm actually, I've got an organizational change background, so I actually went back to that knowledge.

And I believe it was actually originally developed for terminal illness in terms of how you move through stages of grief around that.

But yeah, it was very hard for me to be coherent enough in the distress and in parenting a baby to be able to explain to people, "I'm going through this grief" because people couldn't understand it because I think a lot of people felt like, "Well, he's still here.

He's gonna be okay" and it's sort of like, yes, but our life is forever going to have this.

It's not this fear of is he gonna get through it, which was not a given at all, and at the other side, is it gonna come back, which we're also told is, you know, there is a pretty high risk.

But [laughs] yeah, and so I felt like so those stages are... and they're not linear, by the way.

Why I'm mentioning this is because when people say, "Ask for help," you know, "Ask everyone around you for help and things," I was in such fear and denial that it was happening.

You know, I didn't want to call the Leukemia Foundation because I didn't want it to be true.

There isn't that same threshold crossing that a lot of people, you know, that we had to go through.

Life still looks as though it materially it seems to be the same.Which I think is difficult to comprehend if you're not actually intimately involved.

How was it for you, Sally? Would you agree with that as well? Is that your take on it?

I've thought a lot about the emotional experience and how it's sort of like you get given this medical, physical treatment plan, and even mental health these days is more addressed, and there's not so much...

It just felt like there was no roadmap on the emotional experience, which I'm actually, I've got an organizational change background, so I actually went back to that knowledge.

And I believe it was actually originally developed for terminal illness in terms of how you move through stages of grief around that.

But yeah, it was very hard for me to be coherent enough in the distress and in parenting a baby to be able to explain to people, "I'm going through this grief" because people couldn't understand it because I think a lot of people felt like, "Well, he's still here.

He's gonna be okay" and it's sort of like, yes, but our life is forever going to have this.

It's not this fear of is he gonna get through it, which was not a given at all, and at the other side, is it gonna come back, which we're also told is, you know, there is a pretty high risk.

But [laughs] yeah, and so I felt like so those stages are... and they're not linear, by the way.

Why I'm mentioning this is because when people say, "Ask for help," you know, "Ask everyone around you for help and things," I was in such fear and denial that it was happening.

You know, I didn't want to call the Leukemia Foundation because I didn't want it to be true.
The rest of this transcript — segmented and speaker-labeled, so you land on the exact moment something was said
Search every transcript — by keyword, by phrase, or by meaning, across every show Radar indexes
Trends — what is surging across podcasts, measured against its own baseline
Alerts — when a name you follow appears in a newly indexed episode
No account is needed to search Radar.