Sep 9, 2026 · 45 min · 9 segments
Living with chronic illness can change everything; including how you see yourself, your future, and your place in the world. In this conversation, Sam and Deanna dive into the realities of living…
Deanna SteinleGuestHi, Deanna.
Thank you so much for hanging out with me today.
I am excited to talk to you again and share a little bit more about your rare disease story and your advocacy efforts.
So since you are new to our space, I'll give you a second to introduce yourself to the community and a little bit about who you are.
I am the founder of Resilience is Beautiful in the social media space and in conferences and congresses around the world, helping advocate for rare disease and specifically generalized myasthenia gravis.
When I first started my journey, I never thought that my logo was going to be partnering with some of the biggest companies in the world.
truly like a pinch me moment for sure, because just never knew that this is what it was going to become.
And I'm really proud that Resilience is Beautiful could be so multifaceted and used in a lot of different spaces.
And a couple of those things are even just talking about marriage and chronic illness, talking about service dogs, advocating for what does it look like between you and your doctor, or setting healthy boundaries with family and friends.
There's so many ways that we have those conversations that I think are really meaningful and create impact that most people will never even see.
Read the full transcript.
Create an account to read the whole episode, search across every transcript, and follow the shows you care about.
Hi, Deanna.
Thank you so much for hanging out with me today.
I am excited to talk to you again and share a little bit more about your rare disease story and your advocacy efforts.
So since you are new to our space, I'll give you a second to introduce yourself to the community and a little bit about who you are.
I am the founder of Resilience is Beautiful in the social media space and in conferences and congresses around the world, helping advocate for rare disease and specifically generalized myasthenia gravis.
When I first started my journey, I never thought that my logo was going to be partnering with some of the biggest companies in the world.
truly like a pinch me moment for sure, because just never knew that this is what it was going to become.
And I'm really proud that Resilience is Beautiful could be so multifaceted and used in a lot of different spaces.
And a couple of those things are even just talking about marriage and chronic illness, talking about service dogs, advocating for what does it look like between you and your doctor, or setting healthy boundaries with family and friends.
There's so many ways that we have those conversations that I think are really meaningful and create impact that most people will never even see.