Everyday Life: Troy's Story of Fatigue, Music, & Resilience

And I did.

Like I can't tour anymore.

It's hard to, I've filled in a few times here and there.

I just did it a few weeks ago and I was even struggling then for like three days.

So I took up, I've always learned how to play the bass guitar and keyboard.

So I got myself more into string instruments today because it's not as much, you know, It's joining us on my body as it is drumming.

But drumming, like I said, I started when I was 12.

That was my life.

That was my passion.

That's how I built things.

And, you know, it's quite depressing.

It really is.

I can't imagine how difficult it would be to have something you've loved for most of your life become harder to do because of E.T. That's terrifying.

Terrible.

Especially when you're living with something like ET that frequently gets dismissed or overlooked because it is quote unquote invisible.

And I think about it.

People look at you and they go, you don't look sick.

You look fine.

And I'm like, why don't you step in my body for a day just to see what I go through.

Then you can tell me that.

I said, when you have a toothache, you look fine, right? And they're like, well, yeah, unless it's swollen.

I said, but if it's not swollen, you're hurting, correct? They said, well, yeah.

And I said, exactly.

That's exactly how we feel.

You don't see our pain inside.