From Misdiagnosis To Management: Ryenn’s POTS Journey

So if you're listening and you're like, "Oh, wow, this sounds like me," or, "Oh, I never even thought of celiac," or something like that, it's just a blood test, so just go get it done.

And, and there is then endoscopy and follow-up and GI and all of those things.

But I think it's something just to kind of rule in or rule out, or if you are somebody that has a ton of GI issues and, and that's, like, your main thing and then you have a little bit of tachycardia, if you're confirmed celiac and weird other symptoms, look at POTS.

I mean, the link is, we see it all the time.

Yeah.

Yeah, and it's, you know, for me-

So overwhelming

... with the May-Thurners, I remember feeling...

Like, you just wanna fix what you know.

And so I remember feeling like, "Well, I need to get a stent," like now.

Because I'm thinking if my May-Thurners-

Mm-hmm

... is making the POTS worse, like, you wanna...

And they, I mean, there are a lot of people who have been stented that say their POTS symptoms do improve.

Um, but I'm-

Mm

... thankful from that standpoint that I tried the program and tried another route before...

I mean, my vascular surgeon was very open and honest, like, "I typically stent 60 or 70-year-olds-

Mm-hmm

... not 30-year-olds.

And, like, once it's in, it's in.

I can't guarantee you that it's gonna last the, hopefully, you know, the remainder of your-

Mm

...

however many years." Um, and so I'm so thankful that I found the program so that I was able to improve my quality of life and my symptoms in a way that even if it buys me 10 more years and eventually I need a stent for May-Thurners-