How to Keep Training When Your Body Gives You Every Reason Not To | Andrew Conrad

[laughs] Um, so I see you're wearing a Deborah shirt.

What is Deborah?

Deborah?Uh, yeah.

So DEBRA is one of the organizations for my skin disorder.

It's one of the charity, um, uh, uh, so that's, um, they've kind of been a part of my life for my, my entire life, basically.

Um, but, uh, debra.org, it's, um, uh, Epidermolysis Bullosa Foundation.

Mm-hmm.

Um, and, uh, I, I did a blog post through them.

They host events, uh, throughout the world.

I know there's different...

There's like a DEBRA UK-

Mm

... um, that I know is, is pretty active, and the DEBRA in the United States is pretty active.

Um, but it's a good source for information, debra.org, uh, online.

Um, and, uh, they have, you know, registered nurses that w- can help families, you know, navigate, uh, having a kid with EB.

Yeah.

Um, they can help, uh, with, uh, the cost of, of, uh, bandages and medical care.

And I mean, a lot of families with, uh, children that have recessive dystrophic EB, uh, or just EB in general, I mean, the costs to buy bandages and, uh, Neosporin or, or you know, higher level all, all sorts of stuff, I mean, it can cost $100,000 or more a year.

Mm.

Oh my gosh.

Um, which obviously is, you know, and insurance doesn't always cover it.

Wow.

So I remember my mom growing up battling with, you know, the insurance companies around to get them to cover things.

Um, and, uh, so, so DEBRA helps with, with a lot-

Yeah

[laughs] Um, so I see you're wearing a Deborah shirt.

What is Deborah?

Deborah?Uh, yeah.

So DEBRA is one of the organizations for my skin disorder.

It's one of the charity, um, uh, uh, so that's, um, they've kind of been a part of my life for my, my entire life, basically.

Um, but, uh, debra.org, it's, um, uh, Epidermolysis Bullosa Foundation.

Mm-hmm.

Um, and, uh, I, I did a blog post through them.

They host events, uh, throughout the world.

I know there's different...

There's like a DEBRA UK-

Mm

... um, that I know is, is pretty active, and the DEBRA in the United States is pretty active.

Um, but it's a good source for information, debra.org, uh, online.

Um, and, uh, they have, you know, registered nurses that w- can help families, you know, navigate, uh, having a kid with EB.

Yeah.

Um, they can help, uh, with, uh, the cost of, of, uh, bandages and medical care.

And I mean, a lot of families with, uh, children that have recessive dystrophic EB, uh, or just EB in general, I mean, the costs to buy bandages and, uh, Neosporin or, or you know, higher level all, all sorts of stuff, I mean, it can cost $100,000 or more a year.

Mm.

Oh my gosh.

Um, which obviously is, you know, and insurance doesn't always cover it.

Wow.

So I remember my mom growing up battling with, you know, the insurance companies around to get them to cover things.

Um, and, uh, so, so DEBRA helps with, with a lot-

Yeah