Jason KarlawishHost
Terrence CaseyHost
And despite what she wants, it's not always in her control who shows up in conversations with her father.

And when I, as I listened to her, these remarks from her, it was a brilliant documentation of what I think everyone in the role of a family member or a friend who is with someone with dementia experiences, and that is the uncanny.

And it happens early in the course once symptoms are evident and amplifies as the symptoms amplify.

It's not a horror, but it's a sense of, wait a minute, this person both is and also isn't who I know them.

There's the one I know, I've known for years, in Emma's case, her father, in my case, my father, but also this different person.

And what that leads to is the second phenomenon that I think is almost universal,
which is
loss.
that is the grief that Emma
describing here.

Emma is vividly describing the experience of ambiguous loss, that her father is both there and not there, a bit of a disconnection, loss of who he was, and that is the grief she's experienced.
with

caregivers, to say there is this feeling of otherness that you may be experiencing when you're with your relative, this uncanniness, and to speak openly about, quite frankly, ambiguous loss, to call it by that name and say that.

And despite what she wants, it's not always in her control who shows up in conversations with her father.

And when I, as I listened to her, these remarks from her, it was a brilliant documentation of what I think everyone in the role of a family member or a friend who is with someone with dementia experiences, and that is the uncanny.

And it happens early in the course once symptoms are evident and amplifies as the symptoms amplify.

It's not a horror, but it's a sense of, wait a minute, this person both is and also isn't who I know them.

There's the one I know, I've known for years, in Emma's case, her father, in my case, my father, but also this different person.

And what that leads to is the second phenomenon that I think is almost universal,
which is
loss.
that is the grief that Emma
describing here.

Emma is vividly describing the experience of ambiguous loss, that her father is both there and not there, a bit of a disconnection, loss of who he was, and that is the grief she's experienced.
with

caregivers, to say there is this feeling of otherness that you may be experiencing when you're with your relative, this uncanniness, and to speak openly about, quite frankly, ambiguous loss, to call it by that name and say that.
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