Williams-Beuren syndrome

And so if we could just talk a little bit, 'cause I remember in a previous conversation we've had, you gave some kind of strategies or a resource I think you'd given to Alex's primary school about his genetic condition, just to try and, again, destigmatize that and open up that conversation.

When Alex was in kindergarten, we shared this video, and we're lucky in the Williams Syndrome community, there's this beautiful video called "Your Friend Has Williams Syndrome." And so it talks about you might notice that they remember everybody's names or they're really friendly and it chooses the-

Yeah

... strengths that are quite typical characteristics of a person with Williams Syndrome, plus also just really carefully touches on some things that they might observe which are a little bit harder.

Yeah.

And that was a really wonderful way to open up the conversation with the entire class.

This is part two of our conversation with Stacey Toomer, Navigating Together.

In part one, we heard about Stacey's personal journey navigating her son Alex's diagnosis with Williams Syndrome.

Now we explore how that lived experience led to her work with Belongside Families, a revolutionary family-led organisation supporting parents and carers across New South Wales.

So it's been beautiful hearing your personal journey.