Stephanie Hunter-Banks
Director of US Medical Learning and Development at Jazz Pharmaceuticals, CEO of Hunter B Consulting Group, and rare disease patient advocate.
1
APPEARANCES
1
PODCASTS
Jul 29, 2026
Tom HickeyHOST
So from your perspective, what does that diagnostic journey really look like for the patients and their families? Can you provide us some insights there?
8:23
I'm a living, breathing example of what it's like to go from what I call able to differently abled.
8:34
I'm still on my rare disease journey after 22 years of noticing initial symptoms of foot drop and muscle weakness.
8:43
My technical diagnosis in my chart is muscular dystrophy, NOS, or not otherwise specified diagnosis.
16 MINS LATER
Tom HickeyHOST
So what inspired you to take this step into leadership coaching? Can you help us out with that?