
SCN8A
1
MENTIONS
1
EPISODES
1
PODCASTS
Search complete. 1 mention across 1 episode found for "SCN8A".
Sep 10, 2026
Could a Patient Registry Bring KCNA2 Treatments Closer? Insights from Dr. Jan Henji Driedger
N
8:24Nancy MusarraHOST
And so you're talking about, wait a minute, we're going to collect all kinds of data and we're going to collect that data over time.
N
8:33Nancy MusarraHOST
So before we take a little bit closer look at the data that you're referencing, why is it that every patient group should have their own registry like KCNQ2, KCNA2, SCN8A? Why should every group have their own?
J
8:52Jan Diedrich-HenjaGUEST
Well, The first remark is, I think, very important because the thing we are doing in our registry is we try to collect the data really to learn from it.
J
9:06Jan Diedrich-HenjaGUEST
And the other one, the contact registry is used to be connected.