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Search complete. 1 mention across 1 episode found for "SCN8A".

Sep 10, 2026

Nancy MusarraHOST
8:24
And so you're talking about, wait a minute, we're going to collect all kinds of data and we're going to collect that data over time.
Nancy MusarraHOST
8:33
So before we take a little bit closer look at the data that you're referencing, why is it that every patient group should have their own registry like KCNQ2, KCNA2, SCN8A? Why should every group have their own?
Jan Diedrich-HenjaGUEST
8:52
Well, The first remark is, I think, very important because the thing we are doing in our registry is we try to collect the data really to learn from it.
Jan Diedrich-HenjaGUEST
9:06
And the other one, the contact registry is used to be connected.

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