Nusinersen

But I remember a couple of years, a couple of years ago, um, When Emma was diagnosed, the pediatrician said, there'll probably be a drug in the future, but it'll probably come too late for you.

And around 2020, that drug came along called Spinraza.

And myself and my wife got involved in kind of trying to, it was 300,000 euros a year.

And it was part of one of these miracle drugs that the government didn't want to fund.