National Down Syndrome Society
The National Down Syndrome Society (NDSS) empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.www.ndss.org
16
MENTIONS
7
EPISODES
7
PODCASTS
Search complete. 16 mentions across 7 episodes found for "National Down Syndrome Society".
Sep 11, 2026
Rebecca TurnerHOST
Just head on over to Supertalk TV.
Rebecca TurnerHOST
Now, two Madison besties have been selected to be featured in the 2026 National Down Syndrome Society's Times Square video.
Rebecca TurnerHOST
One of those young ladies' moms is joining us today, Ms. Kristen Lambert, to tell us a little bit more.
Rebecca TurnerHOST
Welcome, Kristen.
Rebecca TurnerHOST
So let's talk about how this happened.
Rebecca TurnerHOST
How did you guys get connected or selected or however it works and what will go down?
Kristen LambertGUEST
So, Andy's mom, Carly Sisk, she actually took the photo of the girls and shared it with the National Down Syndrome Society.
Kristen LambertGUEST
So, basically, every year they have their flagship buddy walk in New York City, and they choose 500 entries, photo entries, from a range of the entries that come in.
speaker_34SOUNDBITE_SPEAKER
It was an emotional moment when I got that email saying that he was selected for this because you know he's only two years old.
Christy AletoCORRESPONDENT
So his photo was chosen from almost 3000 entries in a worldwide call for photos from the National Down Syndrome Society and tomorrow that taught along with 500 other babies, children and adults with Down syndrome from all 50 states will be featured on two jumbotrons to bring awareness to the condition for Charlie's family.
Christy AletoCORRESPONDENT
It's a chance to celebrate their son and also connect with others just like the two year old.
speaker_34SOUNDBITE_SPEAKER
Just because he has an extra chromosome, though, doesn't mean he is different than any other kid, right? He loves Miss Rachel.
Cobie SmuldersSOUNDBITE_SPEAKER
Suddenly, my phone won't stop ringing.
Cobie SmuldersSOUNDBITE_SPEAKER
Interviews, magazine features, an invitation to be honored at the National Down Syndrome Society's annual gala.
Cobie SmuldersSOUNDBITE_SPEAKER
Surreal.
Cobie SmuldersSOUNDBITE_SPEAKER
But by far, the most bonkers call of all comes from none other than Merritt Berkshire herself.
Chanda Thomas WhitfieldHOST
Now Jeremiah is taking another big step into the spotlight.
Chanda Thomas WhitfieldHOST
His picture has been selected for the National Down Syndrome Society's annual Times Square video presentation in New York City, one of more than 500 pictures of people with Down syndrome that will be featured from around the world.
Chanda Thomas WhitfieldHOST
His was chosen from more than 2,700 entries.
Chanda Thomas WhitfieldHOST
It's another major moment for the young actor, who is helping to expand what representation can look like on screen.
Terrence DanielsGUEST
This is gonna be aired on Facebook, uh, Live.
Chanda Thomas WhitfieldHOST
And how do we find this streaming?
Joy DanielsGUEST
The National Down Syndrome Society will have a, a Facebook Live streaming of the whole event, from the pictures to the Buddy Walk.
Joy DanielsGUEST
And we are-
Dan VosnosSOUNDBITE_SPEAKER
I have a seven-year-old son named Ellis who has Down syndrome.
Dan VosnosSOUNDBITE_SPEAKER
He is the reason why I left education for the National Down Syndrome Society, and I cannot stay silent about what has happened in this district.
Dan VosnosSOUNDBITE_SPEAKER
A 15-year-old girl with Down syndrome, a student with limited capacity to self-advocate, to understand boundaries, to deport- to report what was being done to her, was allegedly subjected to calculated campaign of grooming and abuse by a teacher in this district.
Dan VosnosSOUNDBITE_SPEAKER
This is documented in a lawsuit that was covered by CBS.
Dan VosnosSOUNDBITE_SPEAKER
Thank you.
Dan VosnosSOUNDBITE_SPEAKER
[audience applauding]
Dan ProftHOST
Uh, for an update on, uh, this matter, pleased to be joined by the aforesaid Dan Vosnos, former educator and athletic director, senior director of development for the National Down Syndrome Society.
Dan ProftHOST
Dan, thanks for being with us.
Lori SauxHOST
And that's our foundation for IDEA.
Stephanie Hall MeredithGUEST
I think what's really helpful at this time, I would say, first and foremost, to pay attention to what the National Down Syndrome Congress, National Down Syndrome Society, the ARC, what their advocacy action alerts and make sure that when they give those alerts that you are being responsive and contacting your legislators.
Stephanie Hall MeredithGUEST
So that's on a federal level, right? But then on a state level, watch and see what's happening and build relationships with your legislators, both at a state and federal level so that you can communicate with them about these issues.
Stephanie Hall MeredithGUEST
And what I mean by paying attention at a state level.
Monique GarnerHOST
Right.
Dinah GodwinGUEST
Syndrome Association of Houston, National Down Syndrome Society, they have advocacy bullet points, I guess, on their websites.
Dinah GodwinGUEST
There are communities of parents of children with disabilities who get together and advocate
Katie OstermaierGUEST
advocacy.