Müllerian agenesis
SyndromeWikipedia
51
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Search complete. 51 mentions across 5 episodes found for "Müllerian agenesis".
Sep 27, 2026
NicHOST
Does
AlisonHOST
that fit into this in terms of funding, though? Because women who have MRKH, which is the condition where they're just completely normal anatomically, but they were born without a uterus.
AlisonHOST
Okay.
AlisonHOST
and they usually have a kind of smaller vagina, they would have to self-fund for fertility treatment with a surrogate.
Madison GibbsGUEST
Just kind of diving right into my story.
Madison GibbsGUEST
I was born with MRKH, Mayor Rokitansky-Kaiserhauser syndrome.
Madison GibbsGUEST
So it is a tongue twister.
Madison GibbsGUEST
I actually found out at 17 that I was diagnosed with this.
Madison GibbsGUEST
The sonogram like on the stomach when I went to the gynecologist.
Madison GibbsGUEST
And when I went to the specialist, she did the vaginal sonogram, came back in the room.
Madison GibbsGUEST
That's when she told me I had MRKH.
Madison GibbsGUEST
and basically told me that I had a third of a uterus.
RaviHOST
Uh, this podcast is where we delve into people's emotional stories and how they overcame those hurdles that life threw at them.
RaviHOST
For this special episode, I have all the way from Norway, Charlie, a lady who suffers-- or ha- has a condition called Mayer-Rokitansky-Kuster-Hauser syndrome, otherwise known as MRKH, and it's a condition that affects one in 5,000 female births.
RaviHOST
Charlie, uh, thank you for coming on this episode with me.
RaviHOST
Uh, it's a very special episode because you're the first guest I've got from another country-
CharlieGUEST
Yeah.
RaviHOST
I connected you-- with you via another charity called Fertility Network UK, which unfortunately, uh, no longer e- exists because it got defunded.
RaviHOST
Uh, but they told me about the amazing work that MRKH Connect do.
RaviHOST
So I'm really intrigued to know because you guys have to deal with, uh, a lot of struggles that ladies have to go through on a day-to-day basis, which I found really interesting to know about.
Stephen PageHOST
We love our subscribers.
Stephen PageHOST
Today I'm talking about MRKH syndrome and surrogacy.
Stephen PageHOST
Now, I want to make sure I spell it out right first and I'm looking down to get the names right because I always muck these names up.
Stephen PageHOST
Meyer-Rodakansky-Kusterhauser syndrome.
Stephen PageHOST
It's not a common condition, but it's one that I have seen for 16 years now in my job, which is women who are born with MRKH syndrome, in essence, these women are born without a uterus.
Stephen PageHOST
And without a uterus, of course, they discover typically when they're about 14 or 15 that they cannot carry a child.
Stephen PageHOST
Now, one of the features of acting for women who have MRKH and their partners is that if you look at the two big groups that I have as clients, which are straight intended parents and gay intended parents, they're not the only groups who do surrogacy, but of surrogacy clients, The key difference between them isn't about sexuality, it's that gay couples, of course, have no other way of conceiving and don't have any history of trauma by the time that they come and talk to a lawyer about making a baby.
Stephen PageHOST
It's a privilege to help everyone who can't have children.
AlisonHOST
Okay.
AlisonHOST
And we also haven't mentioned MRKH.
AlisonHOST
Nope.
AlisonHOST
Because that could be a cause of primary amenorrhea.
AlisonHOST
Again, I think, yeah, there's a lot of crossover with the episode with Cara Williams.
AlisonHOST
Essentially, it's when you don't have a uterus, you don't have a womb.
AlisonHOST
Is that what MRKH is? MRKH, yeah.
AlisonHOST
It's like Meyer-Kauser-Rokitansky.