Joubert syndrome

I'm Stacey Rain.

When Jane Fischer's daughter Susie was born with a rare genetic disorder called Joubert syndrome, doctors said she would never walk, she would never talk, she would never learn.

But Jane refused to let that diagnosis define her daughter's future.

Instead, she decided to focus on how to help Susie become the fullest and best version of herself.

And then also chronicles hers and your journey, which is such an amazing one.

Exactly.

You are really working to encourage other parents who have a child who's been diagnosed with Joubert syndrome, or as you've done in this whole second part of your career, parents who are navigating raising a child with disabilities.

So I'm guessing that you have many things that you've learned over the years.