hypermobility syndrome

And learning is not just in school, people, right? So the problem with parenting techniques is we are focusing on behavior when we have to focus on regulating ourself first and regulating our child.

We keep putting all this elbow grease here, and we're so frustrated because our kids now, we talked about some of the things that are filling our cup, right? Hypermobility, neurodivergence, lights and chemicals at school, just devices.

Just a lot of things, right? And these are things that are there, right? We're not eliminating all of these things.

We have to balance it out.

This is, you know, we're gonna come with all different kinds of recommendations to treat you, but to also heal your body and help you work and live in this body." We don't, uh, we don't have a cure for EDS of any kind.

Hypermobile, HSD, monogenic type, we don't have a cure, and until we have a cure, what only we can do is really work with what we have and make you as healthy and as vibrant as you can.

And um, and when they hear that, and then they hear that we want to be able to encourage them to have those tools, I think that they get h- they feel more hopeful.

I, I do.

I don't even know.

Um, but the article that we picked is Joint Hypermobility Syndrome for the uro- urogynecologist: a narrative review, and it's by Abaza et al.

Hopefully I said that right.

So, Marisa-

So there's actually, what, like 11 types of EDS now.

Mm-hmm.

And so they're looking specifically at hypermobility, um, or they can also call it joint hypermobility syndrome.

I've also heard it benign hypermobility syndrome.

You've probably had party tricks growing up, showing your friends how you can bend your elbow weird or how you can flip around or put yourself into a pretzel and you could have headaches, you could have gut issues, you could have skin issues being that you don't heal very well, bruising, lots of sprains, lots of strains.

Hypermobile is the most prevalent.

From there you've got your classical, which literally kind of speaks to the name that it's the stretchy skin, it's the skin issues.

And all the other ones are even quite rare.

Her intestines, as well as her stomach, are also dropping into her pelvis.

This is the condition she was pointing to in those scans a few months back.

Hypermobile EDS, POTS, MCAS and drooping organs are all commonly found together.

Now that Rachel officially has all these diagnoses, backed by evidence, she's feeling really confident that the debate about what is wrong with her is finally over.

Yeah,

and get into the correct muscle groups as well rather than just working into that hypermobility.

Hypermobility, I work with a lot of hypermobility.

I'm hypermobile as well.

And I work with a lot of hypermobility.

Sorry,

what is hypermobile?

Hypermobile means that my joints are really flexible, which is super common.

There's like a way you can test for it.

But in my case, it means that I have like sprained a lot of ankles, sublaxed a lot of joints, which is like not – dislocating, but like kind of popping it out and that sort of goes back in on its own.

For anyone watching on YouTube, you'll see me holding the book.

It is The Integral Movement Method for Hypermobility Management.

And you've released this this year.

Congratulations on becoming a published author.

Not many people would have found this one yet.

It's literally got two followers because I haven't launched it properly, which is the Hypermobility Collective, which is just going to be a community for

women in Perth, I think is kind of,

but haven't really got there yet.

'Cause you go...

Hypermobility, my jaw like clicks out basically.

So you're hearing like of my jaw.

It's not your teeth crashing together? That's what it sounds like.