Diagnostic delay
11
MENTIONS
5
EPISODES
5
PODCASTS
Search complete. 11 mentions across 5 episodes found for "Diagnostic delay".
Oct 5, 2026
speaker_0NARRATOR
So let me talk to you about...
Tuan H. VuGUEST
GMG and the high costs of diagnostic delay.
Tuan H. VuGUEST
So this patient has been going on with her symptoms for about 14 months.
Tuan H. VuGUEST
Some people would do antibody testing sequentially.
Tuan H. VuGUEST
And there's also an economic cost where roughly half the patients, and this is pretty consistent across the world, where the patients become underemployed or unemployed.
Tuan H. VuGUEST
And in a country such as the United States where unemployment, Insurance and health care is dependent on jobs, and that would be a major problem in terms of the treatment options.
Tuan H. VuGUEST
I mentioned before about diagnostic delay and the consequences.
Tuan H. VuGUEST
The data we have, which is a few years now, show that the average time from seeking care to diagnosis is roughly 15 and 1 half months, and the patient has seen at least four or five health care providers.
Tuan H. VuHOST
Um, either way is, is okay, but in my case, I would, uh, select, uh, for MuSK and LRP4 and single-fiber EMG.
Tuan H. VuHOST
So let me, uh, talk to you about, um, gMG and the high costs of diagnostic delay.
Tuan H. VuHOST
Uh, so this patient has been going on, um, with her symptoms for about fourteen months.
Tuan H. VuHOST
Um, some people would do antibody testing sequentially.
Tuan H. VuHOST
There's a high rate of, uh, anxiety and depression and social isolation And, um, there's also an economic cost where, uh, roughly half the patients, and, and this is pretty consistent across the world, where the patients become, uh, underemployed or, uh, unemployed.
Tuan H. VuHOST
And in a country, uh, such as United States where im- uh, uh, insurance and health, uh, care is dependent on jobs and, um, that would be a major problem in terms of, uh, the treatment options.
Tuan H. VuHOST
I mentioned before about, uh, diagnostic delay and the consequences.
Tuan H. VuHOST
Um, the, you know, the data we have, which is a few years now, uh, show that the average time from, um, seeking care to diagnosis is roughly fifteen and a half months, and the patient, uh, has seen at least four or five healthcare providers.
Tuan H. VuGUEST
Um, either way is, is okay, but in my case, I would, uh, select, uh, for MuSK and LRP4 and single-fiber EMG.
Tuan H. VuGUEST
So let me, uh, talk to you about, um, gMG and the high costs of diagnostic delay.
Tuan H. VuGUEST
Uh, so this patient has been going on, um, with her symptoms for about fourteen months.
Tuan H. VuGUEST
Um, some people would do antibody testing sequentially.
Tuan H. VuGUEST
There's a high rate of, uh, anxiety and depression and social isolation And, um, there's also an economic cost where, uh, roughly half the patients, and, and this is pretty consistent across the world, where the patients become, uh, underemployed or, uh, unemployed.
Tuan H. VuGUEST
And in a country, uh, such as United States where im- uh, uh, insurance and health, uh, care is dependent on jobs and, um, that would be a major problem in terms of, uh, the treatment options.
Tuan H. VuGUEST
I mentioned before about, uh, diagnostic delay and the consequences.
Tuan H. VuGUEST
Um, the, you know, the data we have, which is a few years now, uh, show that the average time from, um, seeking care to diagnosis is roughly fifteen and a half months, and the patient, uh, has seen at least four or five healthcare providers.
speaker_0NARRATOR
So let me talk to you about...
Tuan VuGUEST
GMG and the high costs of diagnostic delay.
Tuan VuGUEST
So this patient has been going on with her symptoms for about 14 months.
Tuan VuGUEST
Some people would do antibody testing sequentially.
Tuan VuGUEST
And there's also an economic cost where roughly half the patients, and this is pretty consistent across the world, where the patients become underemployed or unemployed.
Tuan VuGUEST
And in a country such as the United States where insurance and health care is dependent on jobs, and that would be a major problem in terms of the treatment options.
Tuan VuGUEST
I mentioned before about diagnostic delay and the consequences.
Tuan VuGUEST
The data we have, which is a few years now, show that the average time from seeking care to diagnosis is roughly 15 and a half months, and the patient has seen at least four or five health care providers.
Alice MolloyGUEST
So it's, we, we get samples that are collected at a baseline level of pain during an acute kind of pain flare, which people with endometriosis experience, but there's not much research yet into why they might have those acute flare-ups, which can be the thing that are really disabling because they're really hard to predict for people.
Alice MolloyGUEST
And it's looking at, at the changes in their biological markers over time, and it's with the aim to reduce, uh, diagnostic delay and develop kind of personalized treatment approaches for people with endometriosis.
Alice MolloyGUEST
So yeah, if, if anyone is in the UK or Ireland and would love to get involved, it's Endo1000 project, or if you're elsewhere, you can still support or donate.
Alice MolloyGUEST
I think it's such a fantastic project, and the team that I work with, you know, we've got clinicians, we've got managers, we've got lab technicians, students.
20 MINS LATER
Arc WomanHOST
I have these migraines with aura," it seems like that person is not telling the truth.
Arc WomanHOST
And unfortunately, with our patriarchal systems and our medical systems, we are set up to not believe these women at all.
Arc WomanHOST
And I guess that's why we have this huge diagnostic delay, because it's like, how can all of these things be wrong with you if you present to me and you don't look unhealthy to me? Is that kind of why you think maybe there is a little bit of diagnostic delay and women are simply not being believed because they are appearing with these clusters of symptoms and they just don't look like they're sick necessarily?
Alice MolloyGUEST
Yeah, that's a great question.